e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1041

6373

7414

BONE DYSPLASIA

1178

1782

2960

CALCIUM & PHOSPHATE

638

3202

3840

GENETIC ENDOCRINE TUMOURS (incl. NETs)

304

2035

2339

GLUCOSE & INSULIN

1125

717

1842

GROWTH & OBESITY

2738

176

2914

HYPOTHAL & PITUITARY

1697

17907

19604

SEX DEVELOPMENT

6261

5358

11619

SYSTEMIC & RHEUMATOLOGICAL

325

348

THYROID

2109

11913

14022

TOTAL

17114

49788

66902

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.