e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1232

7915

9147

BONE DYSPLASIA

1581

2245

3826

CALCIUM & PHOSPHATE

777

4137

4914

GENETIC ENDOCRINE TUMOURS (incl. NETs)

357

2594

2951

GLUCOSE & INSULIN

1282

919

2201

GROWTH & OBESITY

3445

321

3766

HYPOTHAL & PITUITARY

2066

21530

23596

SEX DEVELOPMENT

7107

6820

13927

SYSTEMIC & RHEUMATOLOGICAL

367

394

THYROID

2521

14389

16910

TOTAL

20395

61237

81632

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.