e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

813

4208

5021

BONE DYSPLASIA

787

1102

1889

CALCIUM & PHOSPHATE

488

2185

2673

GENETIC ENDOCRINE TUMOURS (incl. NETs)

252

1468

1720

GLUCOSE & INSULIN

892

473

1365

GROWTH & OBESITY

1358

125

1483

HYPOTHAL & PITUITARY

1261

12654

13915

SEX DEVELOPMENT

5207

3998

9205

SYSTEMIC & RHEUMATOLOGICAL

THYROID

1484

7796

9280

TOTAL

12544

34029

46573

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.