e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1287

8611

9898

BONE DYSPLASIA

1625

2344

3969

CALCIUM & PHOSPHATE

816

4614

5430

GENETIC ENDOCRINE TUMOURS (incl. NETs)

366

2770

3136

GLUCOSE & INSULIN

1331

976

2307

GROWTH & OBESITY

3775

364

4139

HYPOTHAL & PITUITARY

2144

22692

24836

SEX DEVELOPMENT

7421

7114

14535

SYSTEMIC & RHEUMATOLOGICAL

380

410

THYROID

2643

15467

18110

TOTAL

21438

65332

86770

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.