e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

700

3455

4155

BONE DYSPLASIA

679

846

1525

CALCIUM & PHOSPHATE

402

1769

2171

GENETIC ENDOCRINE TUMOURS (incl. NETs)

200

1159

1359

GLUCOSE & INSULIN

749

378

1127

GROWTH & OBESITY

1015

112

1127

HYPOTHAL & PITUITARY

1072

10300

11372

SEX DEVELOPMENT

4545

3219

7764

THYROID

1226

5683

6909

TOTAL

10588

26921

37509

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.