e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

836

4410

5246

BONE DYSPLASIA

950

1144

2094

CALCIUM & PHOSPHATE

536

2320

2856

GENETIC ENDOCRINE TUMOURS (incl. NETs)

256

1514

1770

GLUCOSE & INSULIN

913

496

1409

GROWTH & OBESITY

1430

129

1559

HYPOTHAL & PITUITARY

1303

13135

14438

SEX DEVELOPMENT

5272

4146

9418

SYSTEMIC & RHEUMATOLOGICAL

THYROID

1539

8148

9687

TOTAL

13038

35474

48512

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.