e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1287

8611

9898

BONE DYSPLASIA

1639

2387

4026

CALCIUM & PHOSPHATE

819

4630

5449

GENETIC ENDOCRINE TUMOURS (incl. NETs)

368

2772

3140

GLUCOSE & INSULIN

1331

979

2310

GROWTH & OBESITY

3844

365

4209

HYPOTHAL & PITUITARY

2151

22772

24923

SEX DEVELOPMENT

7437

7144

14581

SYSTEMIC & RHEUMATOLOGICAL

380

410

THYROID

2644

15497

18141

TOTAL

21550

65537

87087

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.