e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1010

5872

6882

BONE DYSPLASIA

1130

1674

2804

CALCIUM & PHOSPHATE

621

3039

3660

GENETIC ENDOCRINE TUMOURS (incl. NETs)

295

1920

2215

GLUCOSE & INSULIN

1103

678

1781

GROWTH & OBESITY

2588

161

2749

HYPOTHAL & PITUITARY

1640

16895

18535

SEX DEVELOPMENT

6088

5111

11199

SYSTEMIC & RHEUMATOLOGICAL

298

321

THYROID

1980

10794

12774

TOTAL

16478

46442

62920

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This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.