e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1026

6135

7161

BONE DYSPLASIA

1138

1710

2848

CALCIUM & PHOSPHATE

624

3091

3715

GENETIC ENDOCRINE TUMOURS (incl. NETs)

301

1953

2254

GLUCOSE & INSULIN

1114

689

1803

GROWTH & OBESITY

2662

162

2824

HYPOTHAL & PITUITARY

1654

17135

18789

SEX DEVELOPMENT

6108

5196

11304

SYSTEMIC & RHEUMATOLOGICAL

298

321

THYROID

2048

11119

13167

TOTAL

16698

47488

64186

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.