e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

810

4178

4988

BONE DYSPLASIA

787

1085

1872

CALCIUM & PHOSPHATE

487

2174

2661

GENETIC ENDOCRINE TUMOURS (incl. NETs)

246

1452

1698

GLUCOSE & INSULIN

891

467

1358

GROWTH & OBESITY

1293

124

1417

HYPOTHAL & PITUITARY

1247

12596

13843

SEX DEVELOPMENT

5182

3921

9103

SYSTEMIC & RHEUMATOLOGICAL

THYROID

1477

7737

9214

TOTAL

12422

33754

46176

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.