e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1270

8399

9669

BONE DYSPLASIA

1605

2322

3927

CALCIUM & PHOSPHATE

792

4468

5260

GENETIC ENDOCRINE TUMOURS (incl. NETs)

358

2716

3074

GLUCOSE & INSULIN

1319

969

2288

GROWTH & OBESITY

3663

348

4011

HYPOTHAL & PITUITARY

2103

22372

24475

SEX DEVELOPMENT

7318

7091

14409

SYSTEMIC & RHEUMATOLOGICAL

375

405

THYROID

2583

15272

17855

TOTAL

21041

64332

85373

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.