e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

755

3799

4554

BONE DYSPLASIA

745

979

1724

CALCIUM & PHOSPHATE

440

1985

2425

GENETIC ENDOCRINE TUMOURS (incl. NETs)

220

1318

1538

GLUCOSE & INSULIN

825

424

1249

GROWTH & OBESITY

1107

117

1224

HYPOTHAL & PITUITARY

1148

11470

12618

SEX DEVELOPMENT

4898

3619

8517

SYSTEMIC & RHEUMATOLOGICAL

THYROID

1315

6238

7553

TOTAL

11453

29950

41403

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.