e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

970

5466

6436

BONE DYSPLASIA

1087

1507

2594

CALCIUM & PHOSPHATE

609

2773

3382

GENETIC ENDOCRINE TUMOURS (incl. NETs)

281

1811

2092

GLUCOSE & INSULIN

1075

641

1716

GROWTH & OBESITY

2459

157

2616

HYPOTHAL & PITUITARY

1576

15783

17359

SEX DEVELOPMENT

5913

4805

10718

SYSTEMIC & RHEUMATOLOGICAL

THYROID

1792

9705

11497

TOTAL

15769

42693

58462

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.