e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1224

7788

9012

BONE DYSPLASIA

1567

2205

3772

CALCIUM & PHOSPHATE

765

4067

4832

GENETIC ENDOCRINE TUMOURS (incl. NETs)

353

2545

2898

GLUCOSE & INSULIN

1274

890

2164

GROWTH & OBESITY

3422

296

3718

HYPOTHAL & PITUITARY

2045

21201

23246

SEX DEVELOPMENT

7034

6706

13740

SYSTEMIC & RHEUMATOLOGICAL

360

387

THYROID

2508

14129

16637

TOTAL

20219

60187

80406

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.