e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1285

8607

9892

BONE DYSPLASIA

1619

2338

3957

CALCIUM & PHOSPHATE

813

4614

5427

GENETIC ENDOCRINE TUMOURS (incl. NETs)

366

2770

3136

GLUCOSE & INSULIN

1330

974

2304

GROWTH & OBESITY

3773

364

4137

HYPOTHAL & PITUITARY

2140

22649

24789

SEX DEVELOPMENT

7415

7109

14524

SYSTEMIC & RHEUMATOLOGICAL

380

410

THYROID

2642

15461

18103

TOTAL

21413

65266

86679

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.