e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

709

3546

4255

BONE DYSPLASIA

688

879

1567

CALCIUM & PHOSPHATE

413

1856

2269

GENETIC ENDOCRINE TUMOURS (incl. NETs)

205

1222

1427

GLUCOSE & INSULIN

761

396

1157

GROWTH & OBESITY

1038

116

1154

HYPOTHAL & PITUITARY

1099

10762

11861

SEX DEVELOPMENT

4678

3253

7931

THYROID

1238

5851

7089

TOTAL

10829

27881

38710

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.