e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1234

7957

9191

BONE DYSPLASIA

1585

2252

3837

CALCIUM & PHOSPHATE

778

4151

4929

GENETIC ENDOCRINE TUMOURS (incl. NETs)

357

2600

2957

GLUCOSE & INSULIN

1294

923

2217

GROWTH & OBESITY

3445

322

3767

HYPOTHAL & PITUITARY

2069

21622

23691

SEX DEVELOPMENT

7112

6911

14023

SYSTEMIC & RHEUMATOLOGICAL

367

394

THYROID

2522

14507

17029

TOTAL

20423

61612

82035

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.