e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1041

6349

7390

BONE DYSPLASIA

1171

1776

2947

CALCIUM & PHOSPHATE

637

3179

3816

GENETIC ENDOCRINE TUMOURS (incl. NETs)

303

2026

2329

GLUCOSE & INSULIN

1124

717

1841

GROWTH & OBESITY

2733

175

2908

HYPOTHAL & PITUITARY

1692

17859

19551

SEX DEVELOPMENT

6252

5358

11610

SYSTEMIC & RHEUMATOLOGICAL

325

348

THYROID

2106

11738

13844

TOTAL

17082

49502

66584

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.