e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1227

7822

9049

BONE DYSPLASIA

1574

2202

3776

CALCIUM & PHOSPHATE

766

4084

4850

GENETIC ENDOCRINE TUMOURS (incl. NETs)

353

2560

2913

GLUCOSE & INSULIN

1279

918

2197

GROWTH & OBESITY

3425

311

3736

HYPOTHAL & PITUITARY

2049

21264

23313

SEX DEVELOPMENT

7056

6780

13836

SYSTEMIC & RHEUMATOLOGICAL

367

394

THYROID

2513

14187

16700

TOTAL

20269

60495

80764

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.