e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

804

4060

4864

BONE DYSPLASIA

785

1066

1851

CALCIUM & PHOSPHATE

461

2116

2577

GENETIC ENDOCRINE TUMOURS (incl. NETs)

240

1399

1639

GLUCOSE & INSULIN

865

457

1322

GROWTH & OBESITY

1260

124

1384

HYPOTHAL & PITUITARY

1233

12302

13535

SEX DEVELOPMENT

5151

3790

8941

SYSTEMIC & RHEUMATOLOGICAL

THYROID

1439

7325

8764

TOTAL

12240

32654

44894

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.