e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

968

5455

6423

BONE DYSPLASIA

1087

1507

2594

CALCIUM & PHOSPHATE

609

2773

3382

GENETIC ENDOCRINE TUMOURS (incl. NETs)

281

1811

2092

GLUCOSE & INSULIN

1071

641

1712

GROWTH & OBESITY

2459

157

2616

HYPOTHAL & PITUITARY

1575

15765

17340

SEX DEVELOPMENT

5903

4805

10708

SYSTEMIC & RHEUMATOLOGICAL

THYROID

1790

9696

11486

TOTAL

15750

42655

58405

Login

e-REC User Name

Password

Forgotten password? To reset your password please click on the following Reset Password link

New Users

To request access to the system please click on the following Self-Registration link

For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.