e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1206

7413

8619

BONE DYSPLASIA

1527

2116

3643

CALCIUM & PHOSPHATE

734

3737

4471

GENETIC ENDOCRINE TUMOURS (incl. NETs)

345

2438

2783

GLUCOSE & INSULIN

1254

828

2082

GROWTH & OBESITY

3233

260

3493

HYPOTHAL & PITUITARY

1995

20343

22338

SEX DEVELOPMENT

6836

6591

13427

SYSTEMIC & RHEUMATOLOGICAL

341

368

THYROID

2438

13416

15854

TOTAL

19595

57483

77078

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.