e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

701

3455

4156

BONE DYSPLASIA

679

850

1529

CALCIUM & PHOSPHATE

403

1769

2172

GENETIC ENDOCRINE TUMOURS (incl. NETs)

200

1162

1362

GLUCOSE & INSULIN

749

378

1127

GROWTH & OBESITY

1018

112

1130

HYPOTHAL & PITUITARY

1074

10324

11398

SEX DEVELOPMENT

4552

3219

7771

THYROID

1226

5743

6969

TOTAL

10602

27012

37614

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.