e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

964

5453

6417

BONE DYSPLASIA

1080

1507

2587

CALCIUM & PHOSPHATE

604

2767

3371

GENETIC ENDOCRINE TUMOURS (incl. NETs)

281

1810

2091

GLUCOSE & INSULIN

1069

641

1710

GROWTH & OBESITY

2455

157

2612

HYPOTHAL & PITUITARY

1575

15757

17332

SEX DEVELOPMENT

5901

4805

10706

SYSTEMIC & RHEUMATOLOGICAL

THYROID

1778

9696

11474

TOTAL

15714

42638

58352

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.