e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

981

5534

6515

BONE DYSPLASIA

1098

1549

2647

CALCIUM & PHOSPHATE

610

2827

3437

GENETIC ENDOCRINE TUMOURS (incl. NETs)

285

1846

2131

GLUCOSE & INSULIN

1082

650

1732

GROWTH & OBESITY

2469

157

2626

HYPOTHAL & PITUITARY

1588

15980

17568

SEX DEVELOPMENT

5932

4839

10771

SYSTEMIC & RHEUMATOLOGICAL

149

172

THYROID

1805

10006

11811

TOTAL

15873

43537

59410

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.