e-Reporting of Rare Conditions (e-REC)

Total number of cases in e-REC by condition group

Condition group

Children(<18)

Adults(≥18)

Total

ADRENAL

1126

6932

8058

BONE DYSPLASIA

1422

2058

3480

CALCIUM & PHOSPHATE

669

3397

4066

GENETIC ENDOCRINE TUMOURS (incl. NETs)

325

2218

2543

GLUCOSE & INSULIN

1170

758

1928

GROWTH & OBESITY

3004

217

3221

HYPOTHAL & PITUITARY

1821

18796

20617

SEX DEVELOPMENT

6420

5945

12365

SYSTEMIC & RHEUMATOLOGICAL

341

364

THYROID

2216

12543

14759

TOTAL

18196

53205

71401

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For further information visit www.eurreb.eu or contact us at registries@lumc.nl

This website is part of the project ‘777215 / EuRRECa’ and ‘946831 / Eurr-Bone’ which have received funding from the European Union’s Health Programme (2014-2020). The content of this website cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains. Project: 101156495 (Endo-ERN), Project: 101157116 (ERN BOND); EU4H-2023-ERN2-IBA-01.